The CARE Registry
The CARE Registry is an international, web-based registry that will help us answer questions about craniofacial microsomia. We plan to collect data from patients and their families who are generous enough to share their experiences with us. Participation in the CARE Registry will add to our collective understanding of craniofacial microsomia.
We hope to:
· Answer research questions that are important to you
· Share data that describes the CARE registry participants
· Identify individuals who are interested in participating in other research opportunities
*We recommend that you use a desktop or laptop to when completing the registry surveys.